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A Harder Death for People With Intellectual Disabilities

from The New York Times

From April 10: In New Hampshire, and in many other states, legal guardians of people with intellectual disabilities can make most medical decisions but, by law, they cannot decline life-sustaining therapies like mechanical ventilation. These laws are meant to protect patients with disabilities from premature discontinuation of life-saving care. Once in court, the judge asks questions aimed at making the right legal decision. But this slow, impersonal, courtroom-based approach to EoL decision-making is a far cry from the prompt, patient-centered, bedside care that all of us deserve. more


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